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DATA SOVEREIGNTY

ABOUT DATA SOVEREIGNTY

Data Sovereignty is First Nations having the right to own, control, access, and steward data (past, present and future) about their communities, lands, and culture to live Mino Pimatisiwin.

FNHSSM's Data Sovereignty Team will capture, protect, and share our stories, in accordance with our own worldviews and self-determining Nations by Our people, Our Knowledge Keepers, Our storytellers, and Our interpreters.

Our goal of data sovereignty will be realized as our team helps guide communities so that:

Every First Nation in Manitoba owns, uses and stores their own data that they would share with the region,
Every First Nation have an ethical review body for research that includes community members,
First Nations apply and lead their own research, and
First Nations use their data to make decisions and share information with their community.

We are mandated by the Chiefs in Assembly to advance First Nation Data Sovereignty in this region.

WHAT IS

DATA

SOVEREIGNTY?

Data Sovereignty is First Nations having access to our own data to Mino Pimatisiwin. First Nations have the right to own, control, access, and steward data (past, present and future) about their communities, lands, and culture.

OUR DEMONSTRATION PROJECTS

The demonstration projects include First Nations who have reached out to FNHSSM to work in partnership to establish research and data governance structures for their community. The Data Sovereignty team is supporting the communities through facilitating discussions, development of concepts, proposals, documents as directed by the First Nation. The information that is gathered during this process will inform the budget and resources business case submitted to the federal government to ensure that all First Nations have support to establish their own data and governance centre along with a regional information governance center.

DATA SOVEREIGNTY TEAM MEMBERS

Ashley

Project Manager

Jillian

Research Public Health Epidemiologist

Carla

Data Sovereignty Implementation Lead

Stephanie

Data Sovereignty Lead

Chyloe

Statistical Analyst

Taylor

Health Systems Impact Postdoctoral Fellow

Erin

Front-end Application Developer

DATA SOVEREIGNTY FUNDING

The First Nation Information Governance Centre is providing resources to implement the First Nation Data Governance Strategy. The focus is to:

determine the First Nation governance and priorities, and
to build a business case for the regional information governance center to meet the needs of First Nations in Manitoba.

This information will contribute to a treasury board submission to develop regional information governance centres in 10 regions across Canada.

Last Updated: 2024-05-29